Below are patient-specific study results that are available to share with participants and their families after a CKiD study visit.
Kidney Function and Other Lab Results
- Access on Nephron Report Menu using your Nephron username/password.
- Results include (but not limited to):
- GFR Results (including serum creatinine and cystatin C)
- Renal Panel (including urine protein and urine creatinine)
- Lipid Panel
- Use the Lab Result Feedback Letter Template to create a feedback letter to share lab results with families.
CPET Feedback Letter and Script
Use CPET Feedback Online Generator to create an individualized participant feedback letter and accompanying CPET feedback script.
- To generate the CPET Participant Feedback letter, sites MUST have a completed CPET Case Report Form (CPET CRF).
- After CPET results have been reviewed and documented on the CPET CRF, key CPET values highlighted in the CPET CRF are entered into the CPET online form.
- Once the required data is entered, the system generates a standardized, editable feedback letter along with a script to support consistent communication of results with families.
- The CPET online generator helps ensure consistency in the presentation of CPET findings across study sites while providing clear and understandable language for participants. The accompanying feedback script should be used to guide verbal discussions and facilitate communication of results.
Visit the CPET Resource page for more information.
Cardiac CT Feedback Letter
- After you receive the cardiac CT results, use the Cardiac CT Feedback Letter Template to create a feedback letter to share with families.
Neurocognitive Testing
- Feedback Templates available on the Neurocognitive Resources page.
CKiD is funded by the National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK), the National institute of Child Health and Human Development (NICHD), and the National Heart, Lung, and Blood Institute (NHLBI): U01DK066143, U01DK066174, U24DK082194 and U24 DK066116