Educational resources for participants & families

Having a child diagnosed with chronic kidney disease can be challenging and overwhelming. We’ve compiled a list of resources from trusted groups and organizations to help you and your family better navigate the circumstances and challenges that may accompany CKD.

The National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK) Resources

Kidney Disease in Children: information about kidney disease in kids, including how it affects children, how it’s diagnosed, and how it’s treated.

Caring for a Child with Kidney Disease: advice on how to care for a child with CKD, and help them successfully navigate their day-to-day lives

Growth Failure in Children with Chronic Kidney Disease: information on growth failure in kids with CKD, including an explanation of what it is, why it happens in this population, and what can be done to treat it

American Kidney Fund (AKF) Resources 

Causes of Kidney Disease in Children: a list and description of some of the common causes of kidney disease in children

Kidney Disease in Children: additional information on the causes of kidney disease in kids, along with information on kidney disease stages, complications, pediatric kidney transplants, and support groups

National Kidney Foundation (NKF) Resources 

Children With Chronic Kidney Disease: Tips for Parents: advice for parents of children with CKD, such as providing guidance on how to let your child feel in control of their medical care and how to share your family’s experience with others

6 Tips for Managing Your Medications When You’re a Teen: tips on managing your own medications and kidney disease during your teenage years, including advocating for yourself, communicating your needs, and getting into a routine

How Your Kidneys Work: information on how the kidneys work, clean our blood, keep our hormones and other important molecules in balance, and regulate our blood pressure

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