Data Collection Forms
There are numerous data collection forms used in the WIHS, encompassing:
- Interview-administered questionnaires
- Physical and gynecological examinations
- Specimen collection and processing
- Outcomes ascertainment
- Administrative
- Miscellaneous substudy questionnaires
Click here to view WIHS data collection forms by visit number.
A summary of the types of forms administered at core WIHS visits is provided below:
| Data Collection Mechanism | Domain | Key Variables |
| Interview-administered questionnaires | Sociodemographics | Housing, employment, income, incarceration, educational experience |
| Health history | Clinical symptoms, body habitus changes, AIDS-defining conditions, cancer, TB, biopsies, liver disease, cardiovascular disease, hospitalization, falls, broken bones, head injury | |
| Medication use | Use of individual therapies (ARV, OI, hepatitis, alternative, others), reasons for starting and stopping ARV medications, ARV dosing and adherence, vaccinations, PEP/PrEP use | |
| OB/GYN | Gynecological surgery, pregnancy, contraceptive use, infections and STDs, menopause, menopausal symptoms | |
| Behavior | Alcohol, drug use, sexual behavior, smoking | |
| Health care utilization | Primary care physician, health insurance, costs, engagement in care | |
| Psychosocial | MOS-HIV Quality of Life scale, CES-D depression scale, abuse and violence | |
| Neurocognitive assessment | Standard and Color Trail Making Tasks, Symbol Digit Modalities Task, Wide Range Achievement Test – version 3 (WRAT-3) Reading Recognition subtest, Wechsler Test of Adult Reading (WTAR), Word Accentuation Test (Spanish-speaking participants), Stroop Task, Hopkins Verbal Learning Test, Verbal Fluency, Letter Number Span, Grooved Pegboard, stress assessment | |
| Physical and gynecological exams | General Health | Blood pressure & pulse, height, weight, breast exam, ankle brachial index, frailty assessment |
| Body habitus | Anthropometry, bioelectric impedance analysis, lipodystrophy | |
| Pelvic and lower genital tract | Lesions, BV assessment, Pap smear, colposcopy | |
| Specimens | Local testing | HIV ELISA/WB, CBC, T-cell subsets (3-color flow), pregnancy, liver/renal panels |
| Central testing | HIV RNA (TaqMan with 20 copy/ml LLD), metabolic lipid/insulin/glucose panels, Pap smears | |
| Repository | Serum, plasma, PBMCs, cervical vaginal lavage (CVL) | |
| Outcomes ascertainment | Self-report | AIDS, cancer, TB, depression, head injury, cardiovascular events, liver disease, other chronic disease conditions |
| Medical records | Cancer, TB | |
| Local registries | Cancer, TB | |
| National Death Index | Death and cause of death |
| Forms by visit number | |
| pre v9 | v9 |
| v10 | v11 |
| v12 | v13 |
| v14 | v15 |
| v16 | v17 |
| v18 | v19 |
| v20 | v21 |
| v22 | v23 |
| v24 | v25 |
| v26 | v27 |
| v28 | v29 |
| v30 | v31 |
| v32 | v33 |
| v33NR | v34 |
| v35 | v36 |
| v37 | v38 |
| v39 | v40 |
| v41 | v42 |
| v43 | v44 |
| v45 | v46 |
| v47 | v48 |
| v49 | v50 |
