{"id":94,"date":"2020-06-29T21:43:19","date_gmt":"2020-06-29T21:43:19","guid":{"rendered":"https:\/\/statepi.jhsph.edu\/mwccs\/?page_id=94"},"modified":"2026-03-16T11:03:57","modified_gmt":"2026-03-16T15:03:57","slug":"ncab","status":"publish","type":"page","link":"https:\/\/statepi.jhsph.edu\/mwccs\/ncab\/","title":{"rendered":"NCAB"},"content":{"rendered":"<h4><a href=\"https:\/\/statepi.jhsph.edu\/mwccs\/wp-content\/uploads\/2021\/07\/NCAB-LOGO-Resizeable-072121.jpg\"><img loading=\"lazy\" decoding=\"async\" class=\"size-medium wp-image-1929 aligncenter\" src=\"https:\/\/statepi.jhsph.edu\/mwccs\/wp-content\/uploads\/2021\/07\/NCAB-LOGO-Resizeable-072121-300x180.jpg\" alt=\"\" width=\"300\" height=\"180\" srcset=\"https:\/\/statepi.jhsph.edu\/mwccs\/wp-content\/uploads\/2021\/07\/NCAB-LOGO-Resizeable-072121-300x180.jpg 300w, https:\/\/statepi.jhsph.edu\/mwccs\/wp-content\/uploads\/2021\/07\/NCAB-LOGO-Resizeable-072121.jpg 350w\" sizes=\"auto, (max-width: 300px) 100vw, 300px\" \/><\/a><\/h4>\n<p><strong>Welcome <\/strong><\/p>\n<p>We look forward to another great year for the NCAB. A few things to know about us:<\/p>\n<ul>\n<li>We closed 2024 with a celebration for MACS 40<sup>th<\/sup> and WIHS 30<sup>th<\/sup> study anniversaries. See the article and video links below for more information.<\/li>\n<li>The study has over 5,775 participants currently active in the study. Since starting the two studies, over 13,800 participants have been involved in the study.<\/li>\n<li>We are currently in wave 105 of visits and you can read more about what\u2019s included below in the Study Visits Updates section below.<\/li>\n<\/ul>\n<p><strong>MACS 40<sup>th<\/sup> Year and WIHS 30<sup>th<\/sup> Year Study Anniversaries<\/strong><\/p>\n<p>Congratulations MACS &amp; WIHS!\u00a0 On December 3, 2024, MWCCS and the NCAB celebrated the study anniversaries for MACS 40<sup>th<\/sup> and WIHS 30<sup>th<\/sup> anniversaries with a daylong celebration at The National Press Club in Washington, D.C. Around 300 people, including the members of the NCAB, joined the festivities.<\/p>\n<p>The day started off with a presentation by Dan Fitzgerald, NCAB Chair, titled \u201c<em>Walking Through Our Shared History<\/em>\u201d which presented the history of the MACS, WIHS and MWCCS studies overlayed onto a timeline of that was going on with the AIDS crisis from 1981 to present. The presentation refreshed memories and informed some for the first time of our study history and the history of the AIDS crisis. There were several inspirational and emotional moments that we collectively shared.<\/p>\n<p>The NCAB then showed a video presentation featuring 20 study participants and members of the NCAB sharing their reflections on being in the study. Other presentations included: a Memorial Recognition of Participants, Staff, Investigators, and NIH Program Officials no longer with us, and the unveiling of a new panel for the National AIDS Memorial Quilt that was created for our anniversary event. The quilt panel was designed by Miriam N. Omura with input from the NCAB and study staff.<\/p>\n<p>In the afternoon, there were presentations for Recognition of prior Staff, Investigators, and NIH Program Officials, MACS and WIHS by the Numbers, Impactful Scientific Contributions, and a panel discussion \u201cA Conversation with HIV stakeholders: A Reflection on the MACS and WIHS History and Impact\u201d. A reception ended the event and allowed all to mix and share time with fellow study colleagues.<\/p>\n<p><strong>2024 MACS\/WIHS Anniversary Event: <a href=\"https:\/\/youtu.be\/sdVZPiqtIaY?si=vtuFRWIeHra5zF2r\" target=\"_blank\" rel=\"noopener\">LINK TO VIDEO<\/a><\/strong><\/p>\n<p><strong>MWCCS Anniversary Quilt Panel<\/strong><\/p>\n<p>The MWCCS 2024 Anniversary quilt panel was designed by Miriam N. Omura, a Birmingham, Alabama textile and mixed media artist, in collaboration with study participants and investigative staff. In her words, \u201cThe idea of the panel is to represent the participants as stars shining against a dark night sky. The light of stars reaches us long after they have lived their lives, but we still get to enjoy their beauty in the night sky. The light of these participants has a lasting impact on all those involved in MWCCS. Despite the anonymity of the participants remembered in this panel, they still hold their individuality and their humanity to those who knew them. While we cannot acknowledge people by name, I hope this panel and design is reflective of the group of individuals as a whole. Each core site is represented on the panel by a larger star than those representing the participants. Those stars will appear in that site\u2019s approximate geographic location on the panel.\u201d<\/p>\n<p>The quilt panel is currently travelling to each of the MWCCS study sites.<\/p>\n<p><img loading=\"lazy\" decoding=\"async\" class=\"aligncenter wp-image-5003 size-large\" src=\"https:\/\/statepi.jhsph.edu\/mwccs\/wp-content\/uploads\/2024\/12\/MWCCS-Quilt-1024x510.jpg\" alt=\"\" width=\"640\" height=\"319\" srcset=\"https:\/\/statepi.jhsph.edu\/mwccs\/wp-content\/uploads\/2024\/12\/MWCCS-Quilt-1024x510.jpg 1024w, https:\/\/statepi.jhsph.edu\/mwccs\/wp-content\/uploads\/2024\/12\/MWCCS-Quilt-300x149.jpg 300w, https:\/\/statepi.jhsph.edu\/mwccs\/wp-content\/uploads\/2024\/12\/MWCCS-Quilt-768x382.jpg 768w, https:\/\/statepi.jhsph.edu\/mwccs\/wp-content\/uploads\/2024\/12\/MWCCS-Quilt-1536x765.jpg 1536w, https:\/\/statepi.jhsph.edu\/mwccs\/wp-content\/uploads\/2024\/12\/MWCCS-Quilt-2048x1020.jpg 2048w\" sizes=\"auto, (max-width: 640px) 100vw, 640px\" \/><\/p>\n<p><strong>What is a Community Advisory Board (CAB)<\/strong><\/p>\n<p>A Community Advisory Board (CAB) is a collective group of study participants and organization representatives that provide community information and assistance to this research project.\u00a0 We work with study leaders to provide oversight and ensure the participant experience is taken into consideration for various study components. We also perform advocacy on topics of interest to participants, such as an autopsy program that can help further the science of living with HIV.<\/p>\n<p>The NCAB has 25 dedicated study participants on the Board, from our study sites across the nation, who come together to make the study participant experience better. We have both women and men on the Board and represent the diverse make-up of the overall study participants. Each of the 13 MWCCS study sites has a local CAB and study participants are encouraged to participate to help build and foster partnerships between researchers and local study communities impacted by HIV\/AIDS.<\/p>\n<p><strong>Kudos<\/strong><\/p>\n<p>The NCAB acknowledges achievements of our members and participants.\u00a0 These include:<\/p>\n<ul>\n<li>Alicia Diggs \u2013 NCAB Member \u2013 author of \u201cStanding on my Healing, From Tainted to Chosen\u201d (2017), attended the \u201cEnhancing the Lives of People with HIV \u2013 A Quality of Life Symposium\u201d (White House, 2024)<\/li>\n<li>Lamar McMullen \u2013 NCAB Member \u2013 appointed to the US PLWH Caucus (2024)<\/li>\n<li>Marc Wagner \u2013 NCAB Member \u2013 received the University of Pittsburgh Public Health Practice Established Partner Award (2024)<\/li>\n<li>Martina Clark &#8211; NCAB Member \u2013 author of \u201cMy Unexpected Life: An International Memoir of Two Pandemics, HIV and Covid-19\u201d (2021)<\/li>\n<li>Valerie Reeder-Bey \u2013 Participant \u2013 author of &#8220;My Grandma Has AIDS, Annisha&#8217;s Story\u201d (1999)<\/li>\n<\/ul>\n<h4>Announcements<\/h4>\n<ul>\n<li><a href=\"https:\/\/statepi.jhsph.edu\/mwccs\/wp-content\/uploads\/2021\/09\/Welcome20to20the20MWCCS20Cohort20-20v3.pdf\">Welcome to the MWCCS Cohort<\/a><\/li>\n<li><a href=\"https:\/\/youtu.be\/JVuLtt1cneo\" target=\"_blank\" rel=\"noopener\">MWCCS Participant Thank You Video<\/a><\/li>\n<\/ul>\n<h4>Media<\/h4>\n<ul>\n<li><a href=\"https:\/\/www.wnycstudios.org\/podcasts\/blindspot\" target=\"_blank\" rel=\"noopener\">WNYC Studio Blindspot<\/a>: Stories from the early days of AIDS<\/li>\n<li><a href=\"https:\/\/drive.google.com\/file\/d\/1YuRZuwUGcgN6TIhh9ISy89r3NQepVnDB\/view?usp=sharing\" target=\"_blank\" rel=\"noopener\">IAS 2025 Conference:<\/a> Stronger Together &#8211; A Conversation on HIV and Cure<\/li>\n<\/ul>\n<h4>NCAB Newsletters<\/h4>\n<ul>\n<li><a href=\"https:\/\/statepi.jhsph.edu\/mwccs\/wp-content\/uploads\/2026\/03\/Participant-Newsletter-Winter-2025_2026_IRB-Final.pdf\">NCAB News &#8211; Chicago Cook County Newsletter &#8211; Winter 2025\/2026<\/a><\/li>\n<li><a href=\"https:\/\/statepi.jhsph.edu\/mwccs\/wp-content\/uploads\/2025\/11\/Pitt-Mens-Study-Newseltter-Spring-2025-8-pages-1.pdf\">NCAB News &#8211; Pittsburgh Newsletter &#8211; Spring 2025<\/a><\/li>\n<li><a href=\"https:\/\/statepi.jhsph.edu\/mwccs\/wp-content\/uploads\/2025\/09\/Cook-County-Summer-Newsletter-Issue-2025.pdf\" target=\"_blank\" rel=\"noopener\">NCAB News &#8211; Chicago Cook County Newsletter &#8211; Summer 2025<\/a><\/li>\n<li><a href=\"https:\/\/statepi.jhsph.edu\/mwccs\/wp-content\/uploads\/2024\/12\/UCSF-MWCCS-Winter-Newsletter-2024.pdf\" target=\"_blank\" rel=\"noopener\">NCAB News &#8211; UCSF Newsletter &#8211; Winter 2024<\/a><\/li>\n<li><a href=\"https:\/\/statepi.jhsph.edu\/mwccs\/wp-content\/uploads\/2025\/03\/Cook-County-MWCCS-Fall-winter-2024-Newsletter.pdf\" target=\"_blank\" rel=\"noopener\">NCAB News &#8211; Chicago Cook County Newsletter &#8211; Fall &#8211; Winter 2024<\/a><\/li>\n<li><a href=\"https:\/\/statepi.jhsph.edu\/mwccs\/wp-content\/uploads\/2024\/12\/Bronx-MWCCS-Fall-Newsletter-2024.pdf\" target=\"_blank\" rel=\"noopener\">NCAB News &#8211; Bronx Newsletter &#8211; Fall 2024<\/a><\/li>\n<li><a href=\"https:\/\/statepi.jhsph.edu\/mwccs\/wp-content\/uploads\/2024\/12\/Pittsburg-MWCCS-Spring-Newlsetter-2024.pdf\" target=\"_blank\" rel=\"noopener\">NCAB News &#8211; Pittsburg Newsletter &#8211; Spring 2024<\/a><\/li>\n<li><a href=\"https:\/\/statepi.jhsph.edu\/mwccs\/wp-content\/uploads\/2024\/08\/Chicago-Cook-County-Spring-2024-Newsletter-Final.pdf\" target=\"_blank\" rel=\"noopener\">NCAB News &#8211; Chicago Cook County Newsletter &#8211; Spring 2024<\/a><\/li>\n<li><a href=\"https:\/\/statepi.jhsph.edu\/mwccs\/wp-content\/uploads\/2024\/07\/SHARE-Summer-Newsletter_July-2024.pdf\" target=\"_blank\" rel=\"noopener\">NCAB News &#8211; SHARE Newsletter &#8211; Summer 2024<\/a><\/li>\n<li><a href=\"https:\/\/statepi.jhsph.edu\/mwccs\/wp-content\/uploads\/2024\/03\/Winter_2023-2024-Newsletter-Final-Draft.pdf\" target=\"_blank\" rel=\"noopener\">NCAB News &#8211; Chicago Cook County Newsletter &#8211; Winter 2023 &#8211; 2024<\/a><\/li>\n<li><a href=\"https:\/\/statepi.jhsph.edu\/mwccs\/wp-content\/uploads\/2024\/01\/2023-Winter-LA-MWCCS-Newsletter-Final.pdf\" target=\"_blank\" rel=\"noopener\">NCAB News &#8211; Los Angles Newsletter &#8211; Winter 2023\u00a0<\/a><\/li>\n<li><a href=\"https:\/\/statepi.jhsph.edu\/mwccs\/wp-content\/uploads\/2023\/09\/NCAB-Summer-2023-Newsletter.pdf\" target=\"_blank\" rel=\"noopener\">NCAB News &#8211; Chicago Cook County Newsletter &#8211; English &#8211; Summer 2023<\/a><\/li>\n<li><a href=\"https:\/\/statepi.jhsph.edu\/mwccs\/wp-content\/uploads\/2023\/05\/MWCCS-Newsletter-Spring-2023_Final.pdf\" target=\"_blank\" rel=\"noopener\">NCAB News &#8211; Chicago Cook County Newsletter &#8211; English &#8211; Spring 2023<\/a><\/li>\n<li><a href=\"https:\/\/statepi.jhsph.edu\/mwccs\/wp-content\/uploads\/2022\/03\/NCAB20News20-20Winter20202220-20v6.pdf\" target=\"_blank\" rel=\"noopener\">NCAB News &#8211; English &#8211; Winter 2022<\/a><\/li>\n<li><a href=\"https:\/\/statepi.jhsph.edu\/mwccs\/wp-content\/uploads\/2021\/08\/NCAB20News20-20Summer-Fall20202120-20v6.pdf\" target=\"_blank\" rel=\"noopener\">NCAB News &#8211; English &#8211; Summer-Fall 2021<\/a><\/li>\n<li><a href=\"https:\/\/statepi.jhsph.edu\/mwccs\/wp-content\/uploads\/2021\/08\/NCAB-News-Summer-2021-v6-ES.pdf\" target=\"_blank\" rel=\"noopener\">NCAB News &#8211; Spanish &#8211; Summer-Fall 2021<\/a><\/li>\n<li><a href=\"https:\/\/statepi.jhsph.edu\/mwccs\/wp-content\/uploads\/2021\/05\/NCAB-News-Spring-2021-v7.pdf\" target=\"_blank\" rel=\"noopener\">NCAB News &#8211; Spring 2021<\/a><\/li>\n<\/ul>\n<h4>Study Visit Updates<\/h4>\n<ul>\n<li><a href=\"https:\/\/statepi.jhsph.edu\/mwccs\/wp-content\/uploads\/2024\/11\/MWCCS-Visit-105-Preview-v1-1.pdf\" target=\"_blank\" rel=\"noopener\">Study Visit Wave 105 Preview<\/a><\/li>\n<li><a href=\"https:\/\/statepi.jhsph.edu\/mwccs\/wp-content\/uploads\/2023\/10\/MWCCS-Visit-104-Preview-Final.pdf\">Study Visit Wave 104 Preview<\/a><\/li>\n<li><a href=\"https:\/\/statepi.jhsph.edu\/mwccs\/wp-content\/uploads\/2022\/09\/MWCCS-Visit-103-Preview-v4.pdf\">Study Visit Wave 103 Preview<\/a><\/li>\n<\/ul>\n<h4>NCAB Organizational Documents<\/h4>\n<ul>\n<li><a href=\"https:\/\/statepi.jhsph.edu\/mwccs\/wp-content\/uploads\/2021\/05\/MWCCS-National-Community-Advisory-Board.pdf\">MWCCS National Community Advisory Board<\/a><\/li>\n<li><a href=\"https:\/\/statepi.jhsph.edu\/mwccs\/wp-content\/uploads\/2021\/05\/NCAB-Merger-Announcement.pdf\">NCAB Merger Announcement<\/a>&#8211; The men and women&#8217;s NCABs merged to create the MWCCS NCAB. Please check out this announcement to learn more about the merger and how to get involved at your local site!<\/li>\n<li><a href=\"https:\/\/statepi.jhsph.edu\/mwccs\/wp-content\/uploads\/2021\/05\/The-National-Community-Advisory-Board-for-website_Final.pdf\">NCAB Mission<\/a><\/li>\n<li><a href=\"https:\/\/statepi.jhsph.edu\/mwccs\/wp-content\/uploads\/2025\/09\/MWCCS-NCAB-Bylaws-Document-Approved-v8-2025-09-15.pdf\" target=\"_blank\" rel=\"noopener\">NCAB Bylaws<\/a><\/li>\n<li><a href=\"https:\/\/statepi.jhsph.edu\/mwccs\/wp-content\/uploads\/2024\/03\/The-NCAB-Handbook-v2-2024-03-18.pdf\" target=\"_blank\" rel=\"noopener\">The NCAB Handbook<\/a><\/li>\n<li><a href=\"https:\/\/statepi.jhsph.edu\/mwccs\/wp-content\/uploads\/2025\/04\/NCAB-Compensation-Presentation-v2-Approved.pdf\" target=\"_blank\" rel=\"noopener\">NCAB Compensation Policy<\/a><\/li>\n<\/ul>\n<h4>NCAB Scientific Presentations and Documents<\/h4>\n<ul>\n<li><a href=\"https:\/\/macshealthyaging.library.georgetown.edu\/participant-portal\">MACS Healthy Aging Library<\/a><\/li>\n<li><a href=\"https:\/\/drive.google.com\/drive\/folders\/1o4ihkTgysw9y54uestLj9sDwJWoQoL9M?usp=sharing\">2022-10-11 NCAB Science Day Presentations<\/a><\/li>\n<li><a href=\"https:\/\/drive.google.com\/drive\/folders\/1XPQ2WS9_4-7FOA_zltpfQRZe6G8x1p3x?usp=sharing\">2022-5-16 NCAB Science Day Presentations<\/a><\/li>\n<li><a href=\"https:\/\/drive.google.com\/drive\/u\/2\/folders\/1HTnFbsXYnDJTi-cX97w3KUuA8GH2LHuT\">2021-10-18 NCAB Science Day Presentations<\/a><\/li>\n<li><a href=\"https:\/\/docs.google.com\/spreadsheets\/d\/1ujZBLFIMwFrD0lcvtZZjbLRtIZZf__bE\/edit?usp=sharing&amp;ouid=117951607266667245815&amp;rtpof=true&amp;sd=true\">Selected MWCCS HIV Research Lay Language Summaries<\/a><\/li>\n<\/ul>\n<h4>Introduction to HIV Cure<\/h4>\n<ul>\n<li><a href=\"https:\/\/drive.google.com\/drive\/folders\/12_LR-yQfrlQJ9B2ICOHA9v8XEaxPMHJv?usp=share_link\">2022-11-14 NCAB &#8220;Introduction to HIV Cure&#8221; presentation<\/a><\/li>\n<li><a href=\"https:\/\/www.treatmentactiongroup.org\/cure\/\">Cure-Related Research Resources<\/a><\/li>\n<\/ul>\n<h4><strong>NCAB Member Perspectives<\/strong><\/h4>\n<ul>\n<li><a href=\"https:\/\/www.hivplusmag.com\/amazing-hiv-positive-people\">HIV Plus Magazine 2021 Amazing People Living with HIV<\/a><\/li>\n<li><a href=\"https:\/\/statepi.jhsph.edu\/mwccs\/wp-content\/uploads\/2021\/05\/Who-Makes-up-the-MWCCS-Participants-v2.pdf\">Who Makes up the MWCCS Participants? An Introduction to Selected Study Participants<\/a><\/li>\n<li><a href=\"https:\/\/statepi.jhsph.edu\/mwccs\/wp-content\/uploads\/2021\/05\/The-Combined-Value-Article-v2.pdf\">The Combined Value of Our Contributions to AIDS Research: A Study Participant&#8217;s Personal Perspective on Years of Study Participation<\/a><\/li>\n<li><a href=\"https:\/\/statepi.jhsph.edu\/mwccs\/wp-content\/uploads\/2021\/05\/Living-with-HIV-in-Rural-Areas-Finding-Help-and-Empowerment-with-MACSWIHS-Combined-Cohort-Study.pdf\">Living with HIV in Rural Areas- Finding Help and Empowerment with MWCCS<\/a><\/li>\n<\/ul>\n<p>&nbsp;<\/p>\n<p>If you are unable to open any of the documents or articles on this site, please download Adobe Reader <a href=\"https:\/\/get.adobe.com\/reader\/\">here<\/a>.<\/p>\n<p><em>Last updated: 11\/22\/2024<\/em><\/p>\n","protected":false},"excerpt":{"rendered":"<p>Welcome We look forward to another great year for the NCAB. A few things to know about us: We closed 2024 with a celebration for MACS 40th and WIHS 30th study anniversaries. See the article and video links below for more information. The study has over 5,775 participants currently active in the study. Since starting [&hellip;]<\/p>\n","protected":false},"author":2,"featured_media":245,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_acf_changed":false,"_monsterinsights_skip_tracking":false,"_monsterinsights_sitenote_active":false,"_monsterinsights_sitenote_note":"","_monsterinsights_sitenote_category":0,"footnotes":""},"class_list":["post-94","page","type-page","status-publish","has-post-thumbnail","hentry"],"acf":[],"_links":{"self":[{"href":"https:\/\/statepi.jhsph.edu\/mwccs\/wp-json\/wp\/v2\/pages\/94","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/statepi.jhsph.edu\/mwccs\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/statepi.jhsph.edu\/mwccs\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/statepi.jhsph.edu\/mwccs\/wp-json\/wp\/v2\/users\/2"}],"replies":[{"embeddable":true,"href":"https:\/\/statepi.jhsph.edu\/mwccs\/wp-json\/wp\/v2\/comments?post=94"}],"version-history":[{"count":123,"href":"https:\/\/statepi.jhsph.edu\/mwccs\/wp-json\/wp\/v2\/pages\/94\/revisions"}],"predecessor-version":[{"id":5398,"href":"https:\/\/statepi.jhsph.edu\/mwccs\/wp-json\/wp\/v2\/pages\/94\/revisions\/5398"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/statepi.jhsph.edu\/mwccs\/wp-json\/wp\/v2\/media\/245"}],"wp:attachment":[{"href":"https:\/\/statepi.jhsph.edu\/mwccs\/wp-json\/wp\/v2\/media?parent=94"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}