{"id":1504,"date":"2020-08-05T15:06:50","date_gmt":"2020-08-05T15:06:50","guid":{"rendered":"https:\/\/statepi.jhsph.edu\/ckid_wp\/?page_id=1504"},"modified":"2025-05-08T14:14:04","modified_gmt":"2025-05-08T18:14:04","slug":"data-collection-forms-codebooks","status":"publish","type":"page","link":"https:\/\/statepi.jhsph.edu\/ckid\/data-collection-forms-codebooks\/","title":{"rendered":"Data Collection Forms &#038; Codebooks"},"content":{"rendered":"\n<style type=\"text\/css\" data-created_by=\"avia_inline_auto\" id=\"style-css-av-6e72hs-2eebc8495b51108a8793c5a33f2a3e68\">\n.flex_column.av-6e72hs-2eebc8495b51108a8793c5a33f2a3e68{\nborder-radius:0px 0px 0px 0px;\npadding:0px 0px 0px 0px;\n}\n<\/style>\n<div  class='flex_column av-6e72hs-2eebc8495b51108a8793c5a33f2a3e68 av_one_full  avia-builder-el-0  el_before_av_one_full  avia-builder-el-first  first flex_column_div av-zero-column-padding  '     ><style type=\"text\/css\" data-created_by=\"avia_inline_auto\" id=\"style-css-av-3pjk5c-02bc79871f8738b7fa97f22ec279eaae\">\n#top .av-special-heading.av-3pjk5c-02bc79871f8738b7fa97f22ec279eaae{\npadding-bottom:10px;\n}\nbody .av-special-heading.av-3pjk5c-02bc79871f8738b7fa97f22ec279eaae .av-special-heading-tag .heading-char{\nfont-size:25px;\n}\n.av-special-heading.av-3pjk5c-02bc79871f8738b7fa97f22ec279eaae .av-subheading{\nfont-size:15px;\n}\n<\/style>\n<div  class='av-special-heading av-3pjk5c-02bc79871f8738b7fa97f22ec279eaae av-special-heading-h2  avia-builder-el-1  avia-builder-el-no-sibling '><h2 class='av-special-heading-tag '  itemprop=\"headline\"  >CKiD Summary Files <span class='special_amp'>&amp;<\/span> Codebooks<\/h2><div class=\"special-heading-border\"><div class=\"special-heading-inner-border\"><\/div><\/div><\/div><\/div>\n\n<style type=\"text\/css\" data-created_by=\"avia_inline_auto\" id=\"style-css-av-35k1dc-b507fed03ad33a7bfc2764f304bb4d2e\">\n.flex_column.av-35k1dc-b507fed03ad33a7bfc2764f304bb4d2e{\nborder-radius:0px 0px 0px 0px;\npadding:0px 0px 0px 0px;\n}\n<\/style>\n<div  class='flex_column av-35k1dc-b507fed03ad33a7bfc2764f304bb4d2e av_one_full  avia-builder-el-2  el_after_av_one_full  el_before_av_hr  first flex_column_div av-zero-column-padding  column-top-margin'     ><section  class='av_textblock_section av-kdhhpznq-70a1ea8d175ff2ad84c5f9231d1a6174 '   itemscope=\"itemscope\" itemtype=\"https:\/\/schema.org\/CreativeWork\" ><div class='avia_textblock'  itemprop=\"text\" ><p>Below are the codebooks for and descriptions of the main summary files used in the CKiD Study. We have also provided a combined version of all the codebooks, a folder of all the individual codebooks, as well as a document with all the CKiD study forms, which can all be found below.<\/p>\n<ul>\n<li style=\"list-style-type: none;\">\n<ul>\n<li style=\"list-style-type: none;\"><\/li>\n<\/ul>\n<\/li>\n<li><a href=\"https:\/\/statepi.jhsph.edu\/ckid\/wp-content\/uploads\/CKidcodebook_allsummaryfiles2025.zip\">Combined CKiD Study Codebooks<\/a><\/li>\n<li><a href=\"https:\/\/statepi.jhsph.edu\/ckid\/wp-content\/uploads\/Individualcodebooks_Jan2025.zip\">Individual CKiD Study Codebooks<\/a><\/li>\n<li><a href=\"https:\/\/statepi.jhsph.edu\/ckid\/wp-content\/uploads\/CKiD_DataCollectionForms25.pdf\">CKiD Data Collection Forms<\/a><\/li>\n<\/ul>\n<\/div><\/section><\/div><div  class='hr av-kdhhuisy-0e1214b2c3ff735cd499b6658f944ce2 hr-default  avia-builder-el-4  el_after_av_one_full  el_before_av_one_full '><span class='hr-inner '><span class=\"hr-inner-style\"><\/span><\/span><\/div><\/p>\n\n<style type=\"text\/css\" data-created_by=\"avia_inline_auto\" id=\"style-css-av-to73vk-4426931955f1c2ac8eae91db4f19b4f2\">\n.flex_column.av-to73vk-4426931955f1c2ac8eae91db4f19b4f2{\nborder-radius:0px 0px 0px 0px;\npadding:0px 0px 0px 0px;\n}\n<\/style>\n<div  class='flex_column av-to73vk-4426931955f1c2ac8eae91db4f19b4f2 av_one_full  avia-builder-el-5  el_after_av_hr  el_before_av_one_full  first flex_column_div av-zero-column-padding  '     ><section  class='av_textblock_section av-kdupl2y8-99369d1381f359048c9846164e72d29f '   itemscope=\"itemscope\" itemtype=\"https:\/\/schema.org\/CreativeWork\" ><div class='avia_textblock'  itemprop=\"text\" ><p><span style=\"text-decoration: underline;\"><strong><span class=\"TextRun BCX0 SCXW157366594\" lang=\"EN-US\" xml:lang=\"EN-US\" data-contrast=\"auto\"><span class=\"NormalTextRun BCX0 SCXW157366594\">VERT_DATEBASE <\/span><\/span><\/strong><\/span><\/p>\n<p><span class=\"TextRun BCX0 SCXW157366594\" lang=\"EN-US\" xml:lang=\"EN-US\" data-contrast=\"auto\"><span class=\"NormalTextRun BCX0 SCXW157366594\"><a href=\"https:\/\/statepi.jhsph.edu\/ckid\/wp-content\/uploads\/vert_datebase_JAN2025.txt\">VERT_DATEBASE<\/a>  is an ID-visit file. It provides visit numbers, corresponding study dates and status of visit. The status of each visit (file record) is defined as regular (occurring per study protocol), irregular (occurring on an accelerated schedule due to an anticipated transition to renal replacement therapy), disenrollment due to participant withdrawal, initiation of RRT, or death (documented via the disenrollment form), or phone-follow-up or in-person interview (non-clinical visit). This file also includes date of first transplant or dialysis (if this has occurred).<\/span><\/span><span class=\"EOP BCX0 SCXW157366594\" data-ccp-props=\"{\">\u00a0<\/span><\/p>\n<\/div><\/section><\/div>\n\n<style type=\"text\/css\" data-created_by=\"avia_inline_auto\" id=\"style-css-av-rcva1s-b4c9af43f40ce824e727852b0c410a2c\">\n.flex_column.av-rcva1s-b4c9af43f40ce824e727852b0c410a2c{\nborder-radius:0px 0px 0px 0px;\npadding:0px 0px 0px 0px;\n}\n<\/style>\n<div  class='flex_column av-rcva1s-b4c9af43f40ce824e727852b0c410a2c av_one_full  avia-builder-el-7  el_after_av_one_full  el_before_av_one_full  first flex_column_div av-zero-column-padding  column-top-margin'     ><section  class='av_textblock_section av-kdupl2y8-16-8f047f6d00398ba532e55b6a68ee778f '   itemscope=\"itemscope\" itemtype=\"https:\/\/schema.org\/CreativeWork\" ><div class='avia_textblock'  itemprop=\"text\" ><p><span style=\"text-decoration: underline;\"><strong><span class=\"TextRun BCX0 SCXW169446514\" lang=\"EN-US\" xml:lang=\"EN-US\" data-contrast=\"auto\"><span class=\"NormalTextRun BCX0 SCXW169446514\" data-ccp-parastyle=\"Normal (Web)\">KIDHIST <\/span><\/span><\/strong><\/span><\/p>\n<p><span class=\"TextRun BCX0 SCXW169446514\" lang=\"EN-US\" xml:lang=\"EN-US\" data-contrast=\"auto\"><span class=\"NormalTextRun BCX0 SCXW169446514\" data-ccp-parastyle=\"Normal (Web)\"><a href=\"https:\/\/statepi.jhsph.edu\/ckid\/wp-content\/uploads\/kidhist_JAN2025.txt\">KIDHIST<\/a>\u00a0is a horizontally structured data file with one record for each participant. It contains key clinical and date variables describing each participant&#8217;s kidney disease history. Clinical variables include primary CKD diagnosis, current CKD status (no history of RRT, on dialysis, transplant recipient, and in rare cases, death), study status at last visit, and parametric estimates of each participant&#8217;s baseline GFR and percentage change in GFR over follow-up. Date variables document the following occurrences: birth, date of kidney disease onset, study baseline, last date RRT free, first transplant, first dialysis, last date known alive (i.e., last contact date), and in rare cases, date of death. This file also includes participant sex.<\/span><\/span><span class=\"EOP BCX0 SCXW169446514\" data-ccp-props=\"{\">\u00a0<\/span><\/p>\n<\/div><\/section><\/div>\n\n<style type=\"text\/css\" data-created_by=\"avia_inline_auto\" id=\"style-css-av-q687pc-dd6a2a0bf00e9d540f5273acbfdd494c\">\n.flex_column.av-q687pc-dd6a2a0bf00e9d540f5273acbfdd494c{\nborder-radius:0px 0px 0px 0px;\npadding:0px 0px 0px 0px;\n}\n<\/style>\n<div  class='flex_column av-q687pc-dd6a2a0bf00e9d540f5273acbfdd494c av_one_full  avia-builder-el-9  el_after_av_one_full  el_before_av_one_full  first flex_column_div av-zero-column-padding  column-top-margin'     ><section  class='av_textblock_section av-kdupl2y8-15-9e5b354bef763f89ade4bfbfa23b7a41 '   itemscope=\"itemscope\" itemtype=\"https:\/\/schema.org\/CreativeWork\" ><div class='avia_textblock'  itemprop=\"text\" ><p><span style=\"text-decoration: underline;\"><strong><span class=\"TextRun BCX0 SCXW134528198\" lang=\"EN-US\" xml:lang=\"EN-US\" data-contrast=\"auto\"><span class=\"NormalTextRun BCX0 SCXW134528198\" data-ccp-parastyle=\"Normal (Web)\">SOCDEM <\/span><\/span><\/strong><\/span><\/p>\n<p><span class=\"TextRun BCX0 SCXW134528198\" lang=\"EN-US\" xml:lang=\"EN-US\" data-contrast=\"auto\"><span class=\"NormalTextRun BCX0 SCXW134528198\" data-ccp-parastyle=\"Normal (Web)\"><a href=\"https:\/\/statepi.jhsph.edu\/ckid\/wp-content\/uploads\/socdem_JAN2025.txt\">SOCDEM<\/a> is an ID-visit file, containing sociodemographic variables such as race, ethnicity, household income, maternal education, family size, and marital status of birth parents. Please note that household income, maternal education, family size and marital status are not fixed at baseline; they can change throughout the course of study participation.<\/span><\/span><span class=\"EOP BCX0 SCXW134528198\" data-ccp-props=\"{\">\u00a0<\/span><\/p>\n<\/div><\/section><\/div>\n\n<style type=\"text\/css\" data-created_by=\"avia_inline_auto\" id=\"style-css-av-oe2jk0-8afd88eacfd5573c31ddd184bcea1bf6\">\n.flex_column.av-oe2jk0-8afd88eacfd5573c31ddd184bcea1bf6{\nborder-radius:0px 0px 0px 0px;\npadding:0px 0px 0px 0px;\n}\n<\/style>\n<div  class='flex_column av-oe2jk0-8afd88eacfd5573c31ddd184bcea1bf6 av_one_full  avia-builder-el-11  el_after_av_one_full  el_before_av_one_full  first flex_column_div av-zero-column-padding  column-top-margin'     ><section  class='av_textblock_section av-kdupl2y8-14-2873eec1ad82261e5a46b984f363933d '   itemscope=\"itemscope\" itemtype=\"https:\/\/schema.org\/CreativeWork\" ><div class='avia_textblock'  itemprop=\"text\" ><p><span style=\"text-decoration: underline;\"><strong><span class=\"TextRun BCX0 SCXW70911483\" lang=\"EN-US\" xml:lang=\"EN-US\" data-contrast=\"auto\"><span class=\"NormalTextRun BCX0 SCXW70911483\" data-ccp-parastyle=\"Normal (Web)\">GFRCALIBRATEDSUMMARY <\/span><\/span><\/strong><\/span><\/p>\n<p><span class=\"TextRun BCX0 SCXW70911483\" lang=\"EN-US\" xml:lang=\"EN-US\" data-contrast=\"auto\"><span class=\"NormalTextRun BCX0 SCXW70911483\" data-ccp-parastyle=\"Normal (Web)\"><a href=\"https:\/\/statepi.jhsph.edu\/ckid\/wp-content\/uploads\/gfrcalibratedsummary_JAN2025.txt\">GFRCALIBRATEDSUMMARY<\/a> is an ID-visit file. It provides a complete description of all variables related to both the measurement and estimation of a participant&#8217;s glomerular filtration rates (GFR). This includes all variables related to the <\/span><\/span><span class=\"TextRun BCX0 SCXW70911483\" lang=\"EN-US\" xml:lang=\"EN-US\" data-contrast=\"auto\"><span class=\"NormalTextRun SpellingErrorV2 BCX0 SCXW70911483\" data-ccp-parastyle=\"Normal (Web)\">iohexol<\/span><\/span><span class=\"TextRun BCX0 SCXW70911483\" lang=\"EN-US\" xml:lang=\"EN-US\" data-contrast=\"auto\"><span class=\"NormalTextRun BCX0 SCXW70911483\" data-ccp-parastyle=\"Normal (Web)\">-infusion protocol (<\/span><\/span><span class=\"TextRun BCX0 SCXW70911483\" lang=\"EN-US\" xml:lang=\"EN-US\" data-contrast=\"auto\"><span class=\"NormalTextRun SpellingErrorV2 SpellingErrorHighlight BCX0 SCXW70911483\" data-ccp-parastyle=\"Normal (Web)\">iGFR<\/span><\/span><span class=\"TextRun BCX0 SCXW70911483\" lang=\"EN-US\" xml:lang=\"EN-US\" data-contrast=\"auto\"><span class=\"NormalTextRun BCX0 SCXW70911483\" data-ccp-parastyle=\"Normal (Web)\">) as well as the biomarkers (serum creatinine, BUN and Cystatin C) that are used to estimate GFR. Estimated GFR (eGFR) variables includes both eGFR2012 eGFR (defined as 41.3*[<\/span><\/span><span class=\"TextRun BCX0 SCXW70911483\" lang=\"EN-US\" xml:lang=\"EN-US\" data-contrast=\"auto\"><span class=\"NormalTextRun SpellingErrorV2 BCX0 SCXW70911483\" data-ccp-parastyle=\"Normal (Web)\">ht<\/span><\/span><span class=\"TextRun BCX0 SCXW70911483\" lang=\"EN-US\" xml:lang=\"EN-US\" data-contrast=\"auto\"><span class=\"NormalTextRun BCX0 SCXW70911483\" data-ccp-parastyle=\"Normal (Web)\">\/serum creatinine]) based on equations from <\/span><\/span><a class=\"Hyperlink BCX0 SCXW70911483\" href=\"https:\/\/pubmed.ncbi.nlm.nih.gov\/22622496\/\" target=\"_blank\" rel=\"noreferrer noopener\"><span class=\"TextRun Underlined BCX0 SCXW70911483\" lang=\"EN-US\" xml:lang=\"EN-US\" data-contrast=\"none\"><span class=\"NormalTextRun BCX0 SCXW70911483\" data-ccp-charstyle=\"Hyperlink\">Schwartz et al. 2012 in Kidney International<\/span><\/span><\/a><span class=\"TextRun BCX0 SCXW70911483\" lang=\"EN-US\" xml:lang=\"EN-US\" data-contrast=\"auto\"><span class=\"NormalTextRun BCX0 SCXW70911483\" data-ccp-parastyle=\"Normal (Web)\">, and CKiD Under 25 (U25) eGFR based on equations from <a href=\"https:\/\/pubmed.ncbi.nlm.nih.gov\/33301749\/\" target=\"_blank\" rel=\"noopener\">Pierce et al. 2021 in Kidney International<\/a>.<\/span><\/span><\/p>\n<\/div><\/section><\/div>\n\n<style type=\"text\/css\" data-created_by=\"avia_inline_auto\" id=\"style-css-av-mk2n5c-6bb4a020026aa6a00cbbb95f9aab04c9\">\n.flex_column.av-mk2n5c-6bb4a020026aa6a00cbbb95f9aab04c9{\nborder-radius:0px 0px 0px 0px;\npadding:0px 0px 0px 0px;\n}\n<\/style>\n<div  class='flex_column av-mk2n5c-6bb4a020026aa6a00cbbb95f9aab04c9 av_one_full  avia-builder-el-13  el_after_av_one_full  el_before_av_one_full  first flex_column_div av-zero-column-padding  column-top-margin'     ><section  class='av_textblock_section av-kdupl2y8-13-528b739a98c1faadf7320c02c97845d2 '   itemscope=\"itemscope\" itemtype=\"https:\/\/schema.org\/CreativeWork\" ><div class='avia_textblock'  itemprop=\"text\" ><p><span style=\"text-decoration: underline;\"><strong><span class=\"TextRun BCX0 SCXW210396597\" lang=\"EN-US\" xml:lang=\"EN-US\" data-contrast=\"auto\"><span class=\"NormalTextRun BCX0 SCXW210396597\" data-ccp-parastyle=\"Normal (Web)\">OUTCOMES <\/span><\/span><\/strong><\/span><\/p>\n<p><span class=\"TextRun BCX0 SCXW210396597\" lang=\"EN-US\" xml:lang=\"EN-US\" data-contrast=\"auto\"><span class=\"NormalTextRun BCX0 SCXW210396597\" data-ccp-parastyle=\"Normal (Web)\"><a href=\"https:\/\/statepi.jhsph.edu\/ckid\/wp-content\/uploads\/outcomes_JAN2025.txt\">OUTCOMES <\/a>is an ID file, with one entry per participant. This file includes information on important study outcomes, such as dialysis, transplant, or death (in rare cases). It also includes information on the initiation of PIP visits (visits for continued follow-up completed by phone, in-person or by mail),\u00a0<\/span><\/span><span class=\"TextRun BCX0 SCXW210396597\" lang=\"EN-US\" xml:lang=\"EN-US\" data-contrast=\"auto\"><span class=\"NormalTextRun SpellingErrorV2 BCX0 SCXW210396597\" data-ccp-parastyle=\"Normal (Web)\">ePIP<\/span><\/span><span class=\"TextRun BCX0 SCXW210396597\" lang=\"EN-US\" xml:lang=\"EN-US\" data-contrast=\"auto\"><span class=\"NormalTextRun BCX0 SCXW210396597\" data-ccp-parastyle=\"Normal (Web)\">\u00a0visits (<\/span><\/span><span class=\"TextRun BCX0 SCXW210396597\" lang=\"EN-US\" xml:lang=\"EN-US\" data-contrast=\"auto\"><span class=\"NormalTextRun SpellingErrorV2 BCX0 SCXW210396597\" data-ccp-parastyle=\"Normal (Web)\">PiPs<\/span><\/span><span class=\"TextRun BCX0 SCXW210396597\" lang=\"EN-US\" xml:lang=\"EN-US\" data-contrast=\"auto\"><span class=\"NormalTextRun BCX0 SCXW210396597\" data-ccp-parastyle=\"Normal (Web)\">\u00a0completed electronically), or date of disenrollment.<\/span><\/span><span class=\"EOP BCX0 SCXW210396597\" data-ccp-props=\"{\">\u00a0<\/span><\/p>\n<\/div><\/section><\/div>\n\n<style type=\"text\/css\" data-created_by=\"avia_inline_auto\" id=\"style-css-av-k2j9hc-f0a2395d4340b4c39c5c0acd95f6d5f9\">\n.flex_column.av-k2j9hc-f0a2395d4340b4c39c5c0acd95f6d5f9{\nborder-radius:0px 0px 0px 0px;\npadding:0px 0px 0px 0px;\n}\n<\/style>\n<div  class='flex_column av-k2j9hc-f0a2395d4340b4c39c5c0acd95f6d5f9 av_one_full  avia-builder-el-15  el_after_av_one_full  el_before_av_one_full  first flex_column_div av-zero-column-padding  column-top-margin'     ><section  class='av_textblock_section av-kdupl2y8-12-b9389f63214f0fd57499fcdeeb8908da '   itemscope=\"itemscope\" itemtype=\"https:\/\/schema.org\/CreativeWork\" ><div class='avia_textblock'  itemprop=\"text\" ><p><span style=\"text-decoration: underline;\"><strong><span class=\"TextRun SCXW207648954 BCX0\" lang=\"EN-US\" xml:lang=\"EN-US\" data-contrast=\"auto\"><span class=\"NormalTextRun SCXW207648954 BCX0\" data-ccp-parastyle=\"Normal (Web)\">LABMARKERS <\/span><\/span><\/strong><\/span><\/p>\n<p><span class=\"TextRun SCXW207648954 BCX0\" lang=\"EN-US\" xml:lang=\"EN-US\" data-contrast=\"auto\"><span class=\"NormalTextRun SCXW207648954 BCX0\" data-ccp-parastyle=\"Normal (Web)\"><a href=\"https:\/\/statepi.jhsph.edu\/ckid\/wp-content\/uploads\/labmarkers_JAN2025.txt\">LABMARKERS<\/a>\u00a0is an ID-visit file containing variables for laboratory markers. The file includes basic metabolic panel, complete blood count (CBC), urine analysis, intact parathyroid, c-reactive protein, lipid panel and iron results, as well as calculated\u00a0<\/span><\/span><span class=\"TextRun SCXW207648954 BCX0\" lang=\"EN-US\" xml:lang=\"EN-US\" data-contrast=\"auto\"><span class=\"NormalTextRun SCXW207648954 BCX0\" data-ccp-parastyle=\"Normal (Web)\">proteinuria, acidosis, hypoalbuminemia, abnormal calcium and phosphate (based on KDOQI thresholds), calcium-phosphate product, elevated CRP, anemia and hemoglobin z-scores and percentiles based on age, sex and race per CDC guidelines.<\/span><\/span><span class=\"EOP SCXW207648954 BCX0\" data-ccp-props=\"{\">\u00a0<\/span><\/p>\n<\/div><\/section><\/div>\n\n<style type=\"text\/css\" data-created_by=\"avia_inline_auto\" id=\"style-css-av-frkcfk-868a668edd79d779cbff000d3a237a60\">\n.flex_column.av-frkcfk-868a668edd79d779cbff000d3a237a60{\nborder-radius:0px 0px 0px 0px;\npadding:0px 0px 0px 0px;\n}\n<\/style>\n<div  class='flex_column av-frkcfk-868a668edd79d779cbff000d3a237a60 av_one_full  avia-builder-el-17  el_after_av_one_full  el_before_av_one_full  first flex_column_div av-zero-column-padding  column-top-margin'     ><section  class='av_textblock_section av-kdupl2y8-11-43ea48a19c9fbd830dc91cba47d18618 '   itemscope=\"itemscope\" itemtype=\"https:\/\/schema.org\/CreativeWork\" ><div class='avia_textblock'  itemprop=\"text\" ><p><span style=\"text-decoration: underline;\"><strong><span class=\"TextRun BCX0 SCXW58403496\" lang=\"EN-US\" xml:lang=\"EN-US\" data-contrast=\"auto\"><span class=\"NormalTextRun BCX0 SCXW58403496\" data-ccp-parastyle=\"Normal (Web)\">CARDIO<\/span><\/span><\/strong><\/span><\/p>\n<p><a href=\"https:\/\/statepi.jhsph.edu\/ckid\/wp-content\/uploads\/Cardio_JAN2025.txt\">CARDIO<\/a> is an ID-visit file containing variables summarizing blood pressure variables from the clinic and ambulatory blood pressure monitoring (ABPM) protocol. Summary clinic BP measurements include SBP and DBP index (based on age, sex and height), and z-scores and percentiles adjusted to age, sex and height. Blood pressure staging, based on 2017 American Academy of Pediatrics guidelines, are also included. Summary ABPM variables include mean systolic and diastolic BP over 24 hour monitoring, load (i.e. % of readings that are over the 95% Soergel limit), dipping status and success rates.<\/p>\n<\/div><\/section><\/div>\n\n<style type=\"text\/css\" data-created_by=\"avia_inline_auto\" id=\"style-css-av-frkcfk-10-c70df057d41928df3706707f91fb897a\">\n.flex_column.av-frkcfk-10-c70df057d41928df3706707f91fb897a{\nborder-radius:0px 0px 0px 0px;\npadding:0px 0px 0px 0px;\n}\n<\/style>\n<div  class='flex_column av-frkcfk-10-c70df057d41928df3706707f91fb897a av_one_full  avia-builder-el-19  el_after_av_one_full  el_before_av_one_full  first flex_column_div av-zero-column-padding  column-top-margin'     ><section  class='av_textblock_section av-kdupl2y8-9-df7d0247b5ddb0731c2fd236aad47630 '   itemscope=\"itemscope\" itemtype=\"https:\/\/schema.org\/CreativeWork\" ><div class='avia_textblock'  itemprop=\"text\" ><p><span style=\"text-decoration: underline;\"><strong><span class=\"TextRun BCX0 SCXW58403496\" lang=\"EN-US\" xml:lang=\"EN-US\" data-contrast=\"auto\"><span class=\"NormalTextRun BCX0 SCXW58403496\" data-ccp-parastyle=\"Normal (Web)\">NEUROSUMMARY <\/span><\/span><\/strong><\/span><\/p>\n<p><span class=\"TextRun BCX0 SCXW58403496\" lang=\"EN-US\" xml:lang=\"EN-US\" data-contrast=\"auto\"><span class=\"NormalTextRun BCX0 SCXW58403496\" data-ccp-parastyle=\"Normal (Web)\"><a href=\"https:\/\/statepi.jhsph.edu\/ckid\/wp-content\/uploads\/neurosummary_JAN2025.txt\">NEUROSUMMARY<\/a> is an ID-visit file containing key variables from the Neurocognitive battery, the Behavioral battery as well as Quality of Life (QoL) measurements. Key variables include: 1) Verbal IQ, Performance IQ and Full Scale IQ as measured by the Mullen, WPPSI-III or WASI; 2) scaled overall achievement score as measured by the WIAT-II-A; 3) scaled attention scores as measured by the K-CPT or CPT-II; 4) scaled executive functioning summary scores as measured by the BRIEF-P or BRIEF and 5) parent and child QoL sub-scale and overall scores as measured by the <\/span><\/span><span class=\"TextRun BCX0 SCXW58403496\" lang=\"EN-US\" xml:lang=\"EN-US\" data-contrast=\"auto\"><span class=\"NormalTextRun SpellingErrorV2 BCX0 SCXW58403496\" data-ccp-parastyle=\"Normal (Web)\">PedsQL<\/span><\/span><span class=\"TextRun BCX0 SCXW58403496\" lang=\"EN-US\" xml:lang=\"EN-US\" data-contrast=\"auto\"><span class=\"NormalTextRun BCX0 SCXW58403496\" data-ccp-parastyle=\"Normal (Web)\">\u00a0inventory. Additional variables are added as the need arises.<\/span><\/span><span class=\"EOP BCX0 SCXW58403496\" data-ccp-props=\"{\">\u00a0<\/span><\/p>\n<\/div><\/section><\/div>\n\n<style type=\"text\/css\" data-created_by=\"avia_inline_auto\" id=\"style-css-av-e2xzm8-3f5f9f13418732593f065a57b0de0621\">\n.flex_column.av-e2xzm8-3f5f9f13418732593f065a57b0de0621{\nborder-radius:0px 0px 0px 0px;\npadding:0px 0px 0px 0px;\n}\n<\/style>\n<div  class='flex_column av-e2xzm8-3f5f9f13418732593f065a57b0de0621 av_one_full  avia-builder-el-21  el_after_av_one_full  el_before_av_one_full  first flex_column_div av-zero-column-padding  column-top-margin'     ><section  class='av_textblock_section av-kdupl2y8-8-b53255b1d74c058e663c7fcb32e72d2d '   itemscope=\"itemscope\" itemtype=\"https:\/\/schema.org\/CreativeWork\" ><div class='avia_textblock'  itemprop=\"text\" ><p><span style=\"text-decoration: underline;\"><strong><span class=\"TextRun BCX0 SCXW205284141\" lang=\"EN-US\" xml:lang=\"EN-US\" data-contrast=\"auto\"><span class=\"NormalTextRun BCX0 SCXW205284141\" data-ccp-parastyle=\"Normal (Web)\">GROWTH <\/span><\/span><\/strong><\/span><\/p>\n<p><span class=\"TextRun BCX0 SCXW205284141\" lang=\"EN-US\" xml:lang=\"EN-US\" data-contrast=\"auto\"><span class=\"NormalTextRun BCX0 SCXW205284141\" data-ccp-parastyle=\"Normal (Web)\"><a href=\"https:\/\/statepi.jhsph.edu\/ckid\/wp-content\/uploads\/growth_JAN2025.txt\">GROWTH<\/a>\u00a0is an ID-visit file, which contains key variables describing markers of growth, such as height, weight, body mass index (BMI), body surface area (BSA), and Tanner staging, as well as variables on birth history, such as low birth weight (<2500 grams), premature birth (gestational age <36 weeks), small for gestational age (birth weight <10th percentile for gestational age), and intensive care unit immediately after delivery. Age and sex adjusted percentiles and z-scores are calculated based on CDC growth charts with normative data.<\/span><\/span><span class=\"EOP BCX0 SCXW205284141\" data-ccp-props=\"{\">\u00a0<\/span><\/p>\n<\/div><\/section><\/div>\n\n<style type=\"text\/css\" data-created_by=\"avia_inline_auto\" id=\"style-css-av-cvqzog-731a0968ff7d470529b72c3a14c55023\">\n.flex_column.av-cvqzog-731a0968ff7d470529b72c3a14c55023{\nborder-radius:0px 0px 0px 0px;\npadding:0px 0px 0px 0px;\n}\n<\/style>\n<div  class='flex_column av-cvqzog-731a0968ff7d470529b72c3a14c55023 av_one_full  avia-builder-el-23  el_after_av_one_full  el_before_av_one_full  first flex_column_div av-zero-column-padding  column-top-margin'     ><section  class='av_textblock_section av-kdupl2y8-7-4099bba19fc75e1f8830222b0ece3440 '   itemscope=\"itemscope\" itemtype=\"https:\/\/schema.org\/CreativeWork\" ><div class='avia_textblock'  itemprop=\"text\" ><p><span style=\"text-decoration: underline;\"><strong><span class=\"TextRun BCX0 SCXW154161129\" lang=\"EN-US\" xml:lang=\"EN-US\" data-contrast=\"auto\"><span class=\"NormalTextRun BCX0 SCXW154161129\" data-ccp-parastyle=\"Normal (Web)\">MEDSUM_FULL <\/span><\/span><\/strong><\/span><\/p>\n<p><span class=\"TextRun BCX0 SCXW154161129\" lang=\"EN-US\" xml:lang=\"EN-US\" data-contrast=\"auto\"><span class=\"NormalTextRun BCX0 SCXW154161129\" data-ccp-parastyle=\"Normal (Web)\"><a href=\"https:\/\/statepi.jhsph.edu\/ckid\/wp-content\/uploads\/medsum_fullJAN2025.txt\">MEDSUM FULL<\/a> contains one record per medication per participant-visit, and provides more detailed information for each medication, including dosing amounts and schedules, as well as a set of variables that describe the participant&#8217;s adherence to the medication.<\/span><\/span><span class=\"EOP BCX0 SCXW154161129\" data-ccp-props=\"{\">\u00a0<\/span><\/p>\n<\/div><\/section><\/div>\n\n<style type=\"text\/css\" data-created_by=\"avia_inline_auto\" id=\"style-css-av-alkqrk-236f0e5d7dc3c8a2b58cbe40c6105e8f\">\n.flex_column.av-alkqrk-236f0e5d7dc3c8a2b58cbe40c6105e8f{\nborder-radius:0px 0px 0px 0px;\npadding:0px 0px 0px 0px;\n}\n<\/style>\n<div  class='flex_column av-alkqrk-236f0e5d7dc3c8a2b58cbe40c6105e8f av_one_full  avia-builder-el-25  el_after_av_one_full  el_before_av_one_full  first flex_column_div av-zero-column-padding  column-top-margin'     ><section  class='av_textblock_section av-kdupl2y8-6-081fa950eaaf2822a9957f211716104b '   itemscope=\"itemscope\" itemtype=\"https:\/\/schema.org\/CreativeWork\" ><div class='avia_textblock'  itemprop=\"text\" ><p><span style=\"text-decoration: underline;\"><strong><span class=\"TextRun BCX0 SCXW256679865\" lang=\"EN-US\" xml:lang=\"EN-US\" data-contrast=\"auto\"><span class=\"NormalTextRun BCX0 SCXW256679865\" data-ccp-parastyle=\"Normal (Web)\">MEDSUM_SHORT <\/span><\/span><\/strong><\/span><\/p>\n<p><span class=\"TextRun BCX0 SCXW256679865\" lang=\"EN-US\" xml:lang=\"EN-US\" data-contrast=\"auto\"><span class=\"NormalTextRun BCX0 SCXW256679865\" data-ccp-parastyle=\"Normal (Web)\"><a href=\"https:\/\/statepi.jhsph.edu\/ckid\/wp-content\/uploads\/medsum_shortJAN2025.txt\">MEDSUM SHORT <\/a>data file is structured as one record per participant-visit, and summarizes whether or not (yes\/no) the study participant has been prescribed any medication during the past 30 days that falls into one of several major medication or supplement classes, such as antihypertensives, ESA&#8217;s, growth hormones, <\/span><\/span><span class=\"TextRun BCX0 SCXW256679865\" lang=\"EN-US\" xml:lang=\"EN-US\" data-contrast=\"auto\"><span class=\"NormalTextRun BCX0 SCXW256679865\" data-ccp-parastyle=\"Normal (Web)\">immunosuppressives<\/span><\/span><span class=\"TextRun BCX0 SCXW256679865\" lang=\"EN-US\" xml:lang=\"EN-US\" data-contrast=\"auto\"><span class=\"NormalTextRun BCX0 SCXW256679865\" data-ccp-parastyle=\"Normal (Web)\">, anticholinergics, and antidepressants (to name a few).<\/span><\/span><span class=\"EOP BCX0 SCXW256679865\" data-ccp-props=\"{\">\u00a0<\/span><\/p>\n<\/div><\/section><\/div>\n\n<style type=\"text\/css\" data-created_by=\"avia_inline_auto\" id=\"style-css-av-8w3iu8-a249337241a20b0327796724717f5817\">\n.flex_column.av-8w3iu8-a249337241a20b0327796724717f5817{\nborder-radius:0px 0px 0px 0px;\npadding:0px 0px 0px 0px;\n}\n<\/style>\n<div  class='flex_column av-8w3iu8-a249337241a20b0327796724717f5817 av_one_full  avia-builder-el-27  el_after_av_one_full  el_before_av_one_full  first flex_column_div av-zero-column-padding  column-top-margin'     ><section  class='av_textblock_section av-kdupl2y8-5-043c6f62ebc175a8937b018fb8d66a7b '   itemscope=\"itemscope\" itemtype=\"https:\/\/schema.org\/CreativeWork\" ><div class='avia_textblock'  itemprop=\"text\" ><p><span style=\"text-decoration: underline;\"><strong><span class=\"TextRun BCX0 SCXW54687376\" lang=\"EN-US\" xml:lang=\"EN-US\" data-contrast=\"auto\"><span class=\"NormalTextRun BCX0 SCXW54687376\" data-ccp-parastyle=\"Normal (Web)\">ECHO <\/span><\/span><\/strong><\/span><\/p>\n<p><span class=\"TextRun BCX0 SCXW54687376\" lang=\"EN-US\" xml:lang=\"EN-US\" data-contrast=\"auto\"><span class=\"NormalTextRun BCX0 SCXW54687376\" data-ccp-parastyle=\"Normal (Web)\"><a href=\"https:\/\/statepi.jhsph.edu\/ckid\/wp-content\/uploads\/echo_JAN2025.txt\">ECHO<\/a> is an ID-visit dataset of summarized echocardiogram scans, collected at biennial visits. The following variables are included in this dataset: left ventricular mass (LVM, including LVM z-score adjusted for lean body mass), left ventricular geometry, left ventricular hypertrophy, ascending aortic distensibility, ascending aortic stiffness, and shortening fraction abnormalities.<\/span><\/span><span class=\"EOP BCX0 SCXW54687376\" data-ccp-props=\"{\">\u00a0<\/span><\/p>\n<\/div><\/section><\/div>\n\n<style type=\"text\/css\" data-created_by=\"avia_inline_auto\" id=\"style-css-av-6u6k34-1b86694a7d607644a5d6da32e03de0e0\">\n.flex_column.av-6u6k34-1b86694a7d607644a5d6da32e03de0e0{\nborder-radius:0px 0px 0px 0px;\npadding:0px 0px 0px 0px;\n}\n<\/style>\n<div  class='flex_column av-6u6k34-1b86694a7d607644a5d6da32e03de0e0 av_one_full  avia-builder-el-29  el_after_av_one_full  el_before_av_one_full  first flex_column_div av-zero-column-padding  column-top-margin'     ><section  class='av_textblock_section av-kdupl2y8-4-dfca11105b3870e75024f8e320c2f398 '   itemscope=\"itemscope\" itemtype=\"https:\/\/schema.org\/CreativeWork\" ><div class='avia_textblock'  itemprop=\"text\" ><p><span style=\"text-decoration: underline;\"><strong><span class=\"TextRun BCX0 SCXW54129704\" lang=\"EN-US\" xml:lang=\"EN-US\" data-contrast=\"auto\"><span class=\"NormalTextRun BCX0 SCXW54129704\" data-ccp-parastyle=\"Normal (Web)\">GRIPSTRENGTH <\/span><\/span><\/strong><\/span><\/p>\n<p><span class=\"TextRun BCX0 SCXW54129704\" lang=\"EN-US\" xml:lang=\"EN-US\" data-contrast=\"auto\"><span class=\"NormalTextRun BCX0 SCXW54129704\" data-ccp-parastyle=\"Normal (Web)\"><a href=\"https:\/\/statepi.jhsph.edu\/ckid\/wp-content\/uploads\/gripstrength_JAN2025.txt\">GRIPSTRENGTH<\/a> is an ID-visit data file. It includes data on grip strength tests, including grip strength (in kilograms and pounds), and maximum grip strength (for left and right hand in pounds).<\/span><\/span><span class=\"EOP BCX0 SCXW54129704\" data-ccp-props=\"{\">\u00a0<\/span><\/p>\n<\/div><\/section><\/div>\n\n<style type=\"text\/css\" data-created_by=\"avia_inline_auto\" id=\"style-css-av-61lyrk-536d0f673e375a9280b65a2960ba01a6\">\n.flex_column.av-61lyrk-536d0f673e375a9280b65a2960ba01a6{\nborder-radius:0px 0px 0px 0px;\npadding:0px 0px 0px 0px;\n}\n<\/style>\n<div  class='flex_column av-61lyrk-536d0f673e375a9280b65a2960ba01a6 av_one_full  avia-builder-el-31  el_after_av_one_full  el_before_av_one_full  first flex_column_div av-zero-column-padding  column-top-margin'     ><section  class='av_textblock_section av-kdupl2y8-3-e76f2d584a156a974cb11216b79e6884 '   itemscope=\"itemscope\" itemtype=\"https:\/\/schema.org\/CreativeWork\" ><div class='avia_textblock'  itemprop=\"text\" ><p><span style=\"text-decoration: underline;\"><strong><span class=\"TextRun BCX0 SCXW96854431\" lang=\"EN-US\" xml:lang=\"EN-US\" data-contrast=\"auto\"><span class=\"NormalTextRun BCX0 SCXW96854431\" data-ccp-parastyle=\"Normal (Web)\">NUTRIENTS <\/span><\/span><\/strong><\/span><\/p>\n<p><span class=\"TextRun BCX0 SCXW96854431\" lang=\"EN-US\" xml:lang=\"EN-US\" data-contrast=\"auto\"><span class=\"NormalTextRun BCX0 SCXW96854431\" data-ccp-parastyle=\"Normal (Web)\"><a href=\"https:\/\/statepi.jhsph.edu\/ckid\/wp-content\/uploads\/nutrients_JAN2025.txt\">NUTRIENTS<\/a> is an ID-visit data file. It includes data on participant nutrient intake, such as total energy intake, total fat, carbohydrates, proteins, sodium, potassium, calcium, omega-3 fatty acids, dietary fiber, vitamins, and caffeine, among others.<\/span><\/span><span class=\"TextRun BCX0 SCXW96854431\" lang=\"EN-US\" xml:lang=\"EN-US\" data-contrast=\"auto\"><span class=\"NormalTextRun BCX0 SCXW96854431\" data-ccp-parastyle=\"Normal (Web)\">\u00a0These data were generated from FFQs (<\/span><\/span><span class=\"TextRun BCX0 SCXW96854431\" lang=\"EN-US\" xml:lang=\"EN-US\" data-contrast=\"auto\"><span class=\"NormalTextRun BCX0 SCXW96854431\" data-ccp-parastyle=\"Normal (Web)\">food frequency questionnaire<\/span><\/span><span class=\"TextRun BCX0 SCXW96854431\" lang=\"EN-US\" xml:lang=\"EN-US\" data-contrast=\"auto\"><span class=\"NormalTextRun BCX0 SCXW96854431\" data-ccp-parastyle=\"Normal (Web)\">s).\u00a0<\/span><\/span><span class=\"EOP BCX0 SCXW96854431\" data-ccp-props=\"{\">\u00a0<\/span><\/p>\n<\/div><\/section><\/div>\n\n<style type=\"text\/css\" data-created_by=\"avia_inline_auto\" id=\"style-css-av-4lkgs0-f34f4ce592823b1ed2143a59214aaf7d\">\n.flex_column.av-4lkgs0-f34f4ce592823b1ed2143a59214aaf7d{\nborder-radius:0px 0px 0px 0px;\npadding:0px 0px 0px 0px;\n}\n<\/style>\n<div  class='flex_column av-4lkgs0-f34f4ce592823b1ed2143a59214aaf7d av_one_full  avia-builder-el-33  el_after_av_one_full  el_before_av_one_full  first flex_column_div av-zero-column-padding  column-top-margin'     ><section  class='av_textblock_section av-kdupl2y8-2-53879bf99bd08e2575bf3ab862716309 '   itemscope=\"itemscope\" itemtype=\"https:\/\/schema.org\/CreativeWork\" ><div class='avia_textblock'  itemprop=\"text\" ><p><span style=\"text-decoration: underline;\"><strong><span class=\"TextRun BCX0 SCXW163872266\" lang=\"EN-US\" xml:lang=\"EN-US\" data-contrast=\"auto\"><span class=\"NormalTextRun BCX0 SCXW163872266\" data-ccp-parastyle=\"Normal (Web)\">CIMT <\/span><\/span><\/strong><\/span><\/p>\n<p><span class=\"TextRun BCX0 SCXW163872266\" lang=\"EN-US\" xml:lang=\"EN-US\" data-contrast=\"auto\"><span class=\"NormalTextRun BCX0 SCXW163872266\" data-ccp-parastyle=\"Normal (Web)\"><a href=\"https:\/\/statepi.jhsph.edu\/ckid\/wp-content\/uploads\/cimt_JAN2025.txt\">CIMT <\/a>is an ID-visit file with data on Carotid Intima-Media Thickness (<\/span><\/span><span class=\"TextRun BCX0 SCXW163872266\" lang=\"EN-US\" xml:lang=\"EN-US\" data-contrast=\"auto\"><span class=\"NormalTextRun SpellingErrorV2 BCX0 SCXW163872266\" data-ccp-parastyle=\"Normal (Web)\">cIMT<\/span><\/span><span class=\"TextRun BCX0 SCXW163872266\" lang=\"EN-US\" xml:lang=\"EN-US\" data-contrast=\"auto\"><span class=\"NormalTextRun BCX0 SCXW163872266\" data-ccp-parastyle=\"Normal (Web)\">) tests. It also includes data on\u202f carotid artery distensibility, stiffness, and pressure strain modulus.<\/span><\/span><span class=\"EOP BCX0 SCXW163872266\" data-ccp-props=\"{\">\u00a0<\/span><\/p>\n<\/div><\/section><\/div>\n\n<style type=\"text\/css\" data-created_by=\"avia_inline_auto\" id=\"style-css-av-2h8p0w-2c72fa309423f7725c5dc647a3753201\">\n.flex_column.av-2h8p0w-2c72fa309423f7725c5dc647a3753201{\nborder-radius:0px 0px 0px 0px;\npadding:0px 0px 0px 0px;\n}\n<\/style>\n<div  class='flex_column av-2h8p0w-2c72fa309423f7725c5dc647a3753201 av_one_full  avia-builder-el-35  el_after_av_one_full  avia-builder-el-last  first flex_column_div av-zero-column-padding  column-top-margin'     ><section  class='av_textblock_section av-kdupl2y8-1-5552976b827492244b1b1bc0436f1f80 '   itemscope=\"itemscope\" itemtype=\"https:\/\/schema.org\/CreativeWork\" ><div class='avia_textblock'  itemprop=\"text\" ><p><span style=\"text-decoration: underline;\"><strong><span class=\"TextRun BCX0 SCXW37255670\" lang=\"EN-US\" xml:lang=\"EN-US\" data-contrast=\"auto\"><span class=\"NormalTextRun BCX0 SCXW37255670\" data-ccp-parastyle=\"Normal (Web)\">CENSUS <\/span><\/span><\/strong><\/span><\/p>\n<p><span class=\"TextRun BCX0 SCXW37255670\" lang=\"EN-US\" xml:lang=\"EN-US\" data-contrast=\"auto\"><span class=\"NormalTextRun BCX0 SCXW37255670\" data-ccp-parastyle=\"Normal (Web)\"><a href=\"https:\/\/statepi.jhsph.edu\/ckid\/wp-content\/uploads\/census_JAN2025.txt\">CENSUS<\/a> is an ID-visit file. It includes census data for the corresponding participant from CBG (Census Block Group), such as FIPS code, total population, average household size, owner vs. renter occupied housing units, median and average household income.<\/span><\/span><span class=\"EOP BCX0 SCXW37255670\" data-ccp-props=\"{\">\u00a0<\/span><\/p>\n<\/div><\/section><\/div>\n","protected":false},"excerpt":{"rendered":"","protected":false},"author":3,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"footnotes":""},"page_page-category":[],"page_page-tag":[],"class_list":["post-1504","page","type-page","status-publish","hentry"],"_links":{"self":[{"href":"https:\/\/statepi.jhsph.edu\/ckid\/wp-json\/wp\/v2\/pages\/1504","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/statepi.jhsph.edu\/ckid\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/statepi.jhsph.edu\/ckid\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/statepi.jhsph.edu\/ckid\/wp-json\/wp\/v2\/users\/3"}],"replies":[{"embeddable":true,"href":"https:\/\/statepi.jhsph.edu\/ckid\/wp-json\/wp\/v2\/comments?post=1504"}],"version-history":[{"count":33,"href":"https:\/\/statepi.jhsph.edu\/ckid\/wp-json\/wp\/v2\/pages\/1504\/revisions"}],"predecessor-version":[{"id":8035,"href":"https:\/\/statepi.jhsph.edu\/ckid\/wp-json\/wp\/v2\/pages\/1504\/revisions\/8035"}],"wp:attachment":[{"href":"https:\/\/statepi.jhsph.edu\/ckid\/wp-json\/wp\/v2\/media?parent=1504"}],"wp:term":[{"taxonomy":"page_page-category","embeddable":true,"href":"https:\/\/statepi.jhsph.edu\/ckid\/wp-json\/wp\/v2\/page_page-category?post=1504"},{"taxonomy":"page_page-tag","embeddable":true,"href":"https:\/\/statepi.jhsph.edu\/ckid\/wp-json\/wp\/v2\/page_page-tag?post=1504"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}